Our friends Patrice and Matt William's, (many of you know our friends Peyton & Amy Crump - Patrice is Peyton's sister), had their baby boy Jonah on the 27th. Please pray for the health of little Jonah & his parents b/c Jonah is believed to have Epidermolysis Bullosa (EB, a rare genetic disease that basically allows the top layer of skin to move independently from the under layer = blister's similar to severe burns, infections, intestinal blockage, etc. They have done a biopsy to determine the type of EB he might have, but it will take 3 weeks to get the results. There is an excerpt from Patrice's blog below. You can also link to her blog here or join the facebook Prayer group & spread the word!
"He is 99% sure that Jonah has a genetic disorder called Epidermolysis Bullosa. He said he sees one case every other year. There are two degrees of this: severe and mild. The doctor said from looking at Jonah's lesions, he guesses he has the severe version. A biopsy will be done (I'm not sure when) to determine his severity level. If this is what he has, it affects three things: his skin, his mucus membranes, and his intestines. The two things that doctors worry about the most are infection (because he doesn't have much of his outer skin to protect him) and intestinal blockage from the sluffing of the intestines (similar to what his skin is doing). At this point, Jonah is on three sets of antibiotics, pain medication, and a sugar water drip. He does not seem to have intestinal blockage at this point. If he were to develop that, he will need surgery."
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